A Comparative Analysis on Quality of Life in Mothers of Autistic, Blind, and Normal-Functioning Children

Document Type : Original Articles


1 Department of Counseling, Razi University, Kermanshah, Iran

2 Department of Neuroscience, School of Advanced Medical Sciences and Technologies, Shiraz University of Medical Sciences


Background: Quality of life largely depends on one’s perception about different aspects life. The present investigation aimed at comparing the quality of life of mothers with autistic, blind, or normal-functioning children.  Materials and Methods: This cross-sectional comparative study was done in a population of 146 mothers of children who aged 6-15 years old, in Shiraz, within the period 2013-2014. Ninety six mothers had children who were either blind or autistic, while 50 had children with no disabilities. Participants were enrolled through multi-stage cluster sampling method.  The Quality of Life (QoL) questionnaire-100 was employed to collect data and one-way ANOVA was used to analyze results. Results: Findings demonstrated a significant difference in QoL of mothers with autistic, blind, and normal-functioning children. Mothers with normal-functioning children had higher levels of QoL than those with blind kids. In addition, the QoL of mothers with autistic children was lower than the other two groups. Conclusion: Considering the importance of quality of life in mothers’ life and subsequent family functioning, relevant programs need to be pursued to improve conflict resolution in distressed groups. 


  1. Mikaeili Mani F. A comparison Between Psychological Well-Being of Mothers of Primary School Students with Intellectual Disabilities and of Mothers of Those Who Have Normal Functioning: The Effect of Mutual Styles. Exceptional Education. 2009;92:53-68.
  2. Milanifar B. Mental Health, 8th Edition: Ghoms Publication, Tehran; 2003.
  3. Abbeduto L, Seltzer MM, Shattuck P, Krauss MW, Orsmond G, Murphy MM. Psychological well-being and coping in mothers of youths with autism, Down syndrome, or fragile X syndrome. American journal of mental retardation : AJMR. 2004;109(3):237-54.
  4. Ostberg M, Hagekull B. Parenting stress and external stressors as predictors of maternal ratings of child adjustment. Scandinavian journal of psychology. 2013;54(3):213-21.
  5. Owen AE, Thompson MP, Kaslow NJ. The mediating role of parenting stress in the relation between intimate partner violence and child adjustment. Journal of family psychology : JFP : journal of the Division of Family Psychology of the American Psychological Association. 2006;20(3):505-13.
  6. Lobar SL. DSM-V Changes for Autism Spectrum Disorder (ASD): Implications for Diagnosis, Management, and Care Coordination for Children With ASDs. Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners. 2015.
  7. Lee PF, Thomas RE, Lee PA. Approach to autism spectrum disorder: Using the new DSM-V diagnostic criteria and the CanMEDS-FM framework. Canadian family physician Medecin de famille canadien. 2015;61
  8. Hartley SL, Papp LM, Bolt D. Spillover of Marital Interactions and Parenting Stress in Families of Children With Autism Spectrum Disorder. Journal of clinical child and adolescent psychology : the official journal for the Society of Clinical Child and Adolescent Psychology, American Psychological Association, Division 53. 2016:1-12.
  9. Ooi KL, Ong YS, Jacob SA, Khan TM. A meta-synthesis on parenting a child with autism. Neuropsychiatric disease and treatment. 2016;12:745-62.
  10. Pruitt MM, Willis K, Timmons L, Ekas NV. The impact of maternal, child, and family characteristics on the daily well-being and parenting experiences of mothers of children with autism spectrum disorder. Autism : the international journal of research and practice. 2016.
  11. Cuesta-Gomez JL, Vidriales-Fernandez R, Carvajal-Molina F. [Quality of life in children and adolescents with autism spectrum disorder without intellectual disability]. Revista de neurologia. 2016;62 Suppl 1:S33-9.
  12. Biggs EE, Carter EW. Quality of Life for Transition-Age Youth with Autism or Intellectual Disability. Journal of autism and developmental disorders. 2016;46(1):190-204.
  13. Zhou JB, Guan HJ, Zhu DQ, Sang AM, Gu HY, Fan XQ, et al. Improvement in visual function and quality of life following a blindness prevention surgery program in a rural area of Eastern China. Experimental and therapeutic medicine. 2013;5(6):1725-31.
  14. Boulton M, Haines L, Smyth D, Fielder A. Health-related quality of life of children with vision impairment or blindness. Developmental medicine and child neurology. 2006;48(8):656-61.
  15. Ellwein LB, Fletcher A, Negrel AD, Thulasiraj RD. Quality of life assessment in blindness prevention interventions. International ophthalmology. 1994;18(5):263-8.
  16. Keshavarzi Arshadi F, Azmoodeh M. Comparison Between Psychological Well-Being of Parents With Exceptional Children and Those with Normal Functioning Children and Its Explanation Based on 5-Factors Character Theory. Mind and Behavior. 2009;3(19):12-28.
  17. Golubovic S, Skrbic R. Agreement in quality of life assessment between adolescents with intellectual disability and their parents. Research in developmental disabilities. 2013;34(6):1863-9.
  18. Allik H, Larsson JO, Smedje H. Health-related quality of life in parents of school-age children with Asperger Syndrome or High-Functioning Autism. Health and quality of life outcomes. 2006;4:1.
  19. Cappe E, Wolff M, Bobet R, Adrien JL. Quality of life: a key variable to consider in the evaluation of adjustment in parents of children with autism spectrum disorders and in the development of relevant support and assistance programmes. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation. 2011;20(8):1279-94.
  20. Renty JO, Roeyers H. Quality of life in high-functioning adults with autism spectrum disorder: The predictive value of disability and support characteristics. Autism : the international journal of research and practice. 2006;10(5):511-24.
  21. Helles A, Gillberg IC, Gillberg C, Billstedt E. Asperger syndrome in males over two decades: Quality of life in relation to diagnostic stability and psychiatric comorbidity. Autism : the international journal of research and practice. 2016.
  22. Joyce K, Singer M, Isralowitz R. Impact of respite care on parents' perceptions of quality of life. Mental retardation. 1983;21(4):153-6.
  23. Mugno D, Ruta L, D'Arrigo VG, Mazzone L. Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder. Health and quality of life outcomes. 2007;5:22.
  24. Fleck MP, Louzada S, Xavier M, Chachamovich E, Vieira G, Santos L, et al. [Application of the Portuguese version of the instrument for the assessment of quality of life of the World Health Organization (WHOQOL-100)]. Revista de saude publica. 1999;33(2):198-205.
  25. Karimloo M, Salehi M, Zaeri F, Masah-Choolabi O, Hatami A, Moosavi-Khatat M. Expansion of Persian Version of World Health Organization Quality of Life Questionnaire-100. Rehabilitation. 2010;11(4):73-82.
  26. Freedman RI, Krauss MW, Seltzer MM. Aging parents' residential plans for adult children with mental retardation. Mental retardation. 1997;35(2):114-23.
  27. Rimmerman A, Duvdevani I. Parents of children and adolescents with severe mental retardation: stress, family resources, normalization, and their application for out-of-home placement. Research in developmental disabilities. 1996;17(6):487-94.
  28. Llewellyn G. Relationships and social support: views of parents with mental retardation/intellectual disability. Mental retardation. 1995;33(6):349-63.
  29. Chomicki S, Wilgosh L. Health care concerns among parents of children with mental retardation. Children's health care : journal of the Association for the Care of Children's Health. 1992;21(4):206-12.
  30. Peterson SL, Robinson EA, Littman I. Parent-child interaction training for parents with a history of mental retardation. Applied research in mental retardation. 1983;4(4):329-42.