Navigating Life with Multiple Sclerosis from the Physical, Social, and Neurocognitive Standpoints

Document Type : Editorial

Author

Department of Neuroscience, School of Advanced Medical Sciences and Technologies, Shiraz University of Medical Sciences

Abstract

Multiple sclerosis (MS) is a life-long condition with a wide and varied range of symptoms which can have a profound impact on all aspects of a patient’s life including future plans, self-confidence, self-esteem, relationships, quality of life and employment prospects. Living with MS can certainly be difficult and frustrating. Over time, however, most people find ways to adapt and come to terms with many of the changes that MS can bring and do manage to live fairly full lives. 

Keywords


  1. Costello K, Thrower BW, Giesser BS. Navigating life with Multiple Sclerosis. Oxford: Oxford University Press; 2015.
  2. Lewis MN. Transformative learning in the Multiple Sclerosis (MS) Community; An ethnographic study examining how and in what ways transformative learning is realized and lived out among members of an MS community [PhD thesis]. Chicago: National Louis University; 2009.
  3. Thomas SP, Pollio HR. Listening to patients: A phenomenological approach to nursing research and practice. Philadelphia: Springer Publishing Company; 2002.
  4. Benito-Leon J, Manuel Morales J, Rivera-Navarro J, Mitchell AJ. A review about the impact of multiple sclerosis on health-related quality of life. Disability and Rehabilitation. 2003; 25(23):1291–303. doi: 10.1080/09638280310001608591
  5. Glozman JM. Quality of life of caregivers. Neuropsychology Review. 2004; 14(4):183–96. doi: 10.1007/s11065-004-8158-5
  6. Heidari M, Akbarfahimi M, Salehi M, Torabi-Nami M. Psychometric properties of the Persian version of the Fatigue Impact Scale (FIS-P) in patients with Multiple Sclerosis. Iranian Rehabilitation Journal. 2015; 13(3):32-8.
  7. Mohr DC, Cox D. Multiple Sclerosis: Empirical literature for the clinical health psychologist. Journal of Clinical Psychology. 2001; 57(4):479–99. doi: 10.1002/jclp.1042
  8. Strober LB, Arnett PA. An examination of four models predicting fatigue in multiple sclerosis. Archives of Clinical Neuropsychology. 2005; 20(5):631–46. doi: 10.1016/j.acn.2005.04.002
  9. Phillips CJ. The cost of Multiple Sclerosis and the cost effectiveness of disease-modifying agents in its treatment. CNS Drugs. 2004; 18(9):561–74. doi: 10.2165/00023210-200418090-00002